Deb Bartlett • November 28, 2019

Seeing firsthand music’s effect on dementia

This is the second in a series introducing readers to the staff at Room 217 Foundation. This week’s blog is written by Deb Bartlett, resource lead at Room217.

I first heard about Room 217 about 10 years ago, when I was working at a stakeholder news agency. I also worked freelance for a community newspaper in Port Perry. I saw a notice about the upcoming Music Care Conference (as it pertained to one of our clients) but noted the information so I could follow up with a feature on Room 217 for the publication. Bev and I met at a Tim Horton’s for the interview. She gave me a couple of CDs, and told me to go home and listen.

My Dad lived with us then, after he’d been diagnosed with early onset dementia and sold the family home. When I got home from work, his habit was to come and chat with me in the kitchen while I prepared dinner. The afternoon that I received those CDs from Bev, I told him we had to listen while I worked. When La Vie En Rose came on, my Dad started singing word for word. I was surprised – it’s not a song I’d ever heard him sing before. When I asked how he knew that song, he launched into hour-long recollection about how his Francophone mom would put Edith Piaf on while she did the housework. He told me about the layout of their little house in the Beaches, how one of his jobs was to get the coal. That music took him back more than 60 years, and it was the first of many times I was able to witness music become a point of connection between past and present in people living with dementia.

Fast forward five years, and I saw an ad for a job at Room 217 Foundation. Recalling my interview with Bev years earlier, and loving the idea of what the Foundation did, I applied. That was almost five years ago. My job at Room 217 encompasses marketing, communications, sales and philanthropy. My background as a journalist has certainly come in handy, as this job can be writing heavy at times. I write grant applications, blog posts, and have helped with the annual report and solicitation letters. I’ve taken photos and videos at Room 217 events, and have represented the Foundation at conferences and trade shows. I love getting out to meet with people who are using Room 217 products, and learning about how music is helping them change the culture of care at their setting. I’ve met some amazing caregivers and been inspired by their commitment to residents, clients and patients.

I think my skill that is most valuable to the organization is what Bev calls “a journalist’s sniff”. I will come across a story about an organization, or see a funding opportunity and be able to make connections to opportunities for Room 217. Because I love news, a favourite part of my day is getting the Google alerts and scrolling through headlines to see if there is any potential to reach out on behalf of the Foundation.

In my spare time, I’m working part-time at a BA in Communications and Critical Thinking at Trent University Durham GTA campus. It will take me another two or three years to finish, but I’m enjoying learning, especially my electives which have all been Indigenous studies courses.

I’m also the mom to three adult children - which is why I have time and money to go back to school. :) Studies have taken over much of my spare time, but in the past I was heavily involved in volunteerism with 4-H, Lindsay Wildcats OBA, the Kawartha Lakes Sport and Rec Council, and Girl Guides of Canada.

A guitar , cowboy hat , cowboy boots and hay are on a wooden table.
By Shelley Neal April 2, 2025
I undertook the MUSIC CARE Certification program when I had journeyed through caring for my mother with Alzheimer’s. It was during my training, I learned how music works in terms of timbre, melody and rhythm and beat, music care domains and music care strategies. It helped me to support mom as the disease progressed. I continued to certify through Music Care and then I had the joy of teaching others the level 1 program Fundamentals of Music Care Theory and Context . I have loved coming alongside others in Long Term Care and using music to support giving voice of what is within one’s life, preventing isolation and loneliness, creating community. I enjoyed all it all. Then, I found myself once again in the Emergency Room with Tim, (my family member) as we were helping him home in his palliative journey. My “outside life” took a back seat and my inside hospital life began. Tim’s was failing and he was no longer able to open his mouth and swallow to obtain nutrient’s due to Parkinson’s . We tried various types of foods, textures and flavours, however, opening his mouth and swallowing remained inaccessible. Tim loved Glen Campbell and Rhinestone Cowboy . When he was a young man, he would repeated play this song until the LP was worn through. He was given a new Glen Campbell CD at Christmas and the song was welcomed back into our lives. There I was ,in my new environment on the tenth floor of the hospital, playing Rhinestone Cowboy. Tim sang along. He actually sang along! He moved his mouth, swallowed and sang along. We were able to get pureed food into his body. Later, the disease continued to ravage his body and Rhinestone Cowboy helped us connected with other such as the speech language pathologist, doctors, cleaning staff and nurses. We sang and danced together with the music and Tim smiled. He knew he was part of a community who loved him. As we knew the end was coming, I played music with a simple melody, 60 beats per minute and soft timbre on my harp to support Tim as he fell into sleep. Near the end, I used tonal music in simple phrases to support calmness matching his breath. Tim passed peacefully and gentle. Today, at his funeral our last song “Rhinestone Cowboy”. After hearing the importance of this song, all the people present joined in singing to honour the village of Tim that so lovingly cared for him. Music Care training has become a natural rhythm in my life to use with aging and sick family members, supporting young children’s learning and providing self-care when I was tired after intense caregiving.
By Shelley Neal March 8, 2024
I initially trained with MUSIC CARE to work with Seniors in Long Term Care who were experiencing dementia and Alzheimer’s Disease. This is the path I travelled with my mom. My training with Music Care and Room 217 supported capacity building in selecting music that was played on my harp or chosen recorded music. The music centered on the care of the individual and their specific needs. My job was to determine the individual’s specific and select music to address these needs. The music selected helped to build community, support sleep, talk about life experiences, create a background landscape of sound, support connection to decrease isolation and loneliness, as well as coming alongside people dying. My training with Music Care helped me understand how to support people “where they were” physically, emotionally, and spiritually. Through using beat, tempo, melody, and timbre, I could cater the music and desired support required for individuals or small groups. My profession is teaching. I am a special education teacher and use music in my primary teaching as a method for learning, practicing language skills, transmitting information about science studies or math equations, as well as having fun and creating our own songs. My teacher toolkit married exceptionally well with the knowledge and skills provided by the Music Care Certification training. Recently, my work with students has involved individual programming for the medically fragile children and the palliative children. I use music (repeating the chorus several times) to engage and connect with the kiddos. We use music to "talk" about feelings (our communication is through eye gaze, eye blinks, and squeezing hands), and content material. I use music to enjoy our relationship of being together. At times, due to medication for seizures, my little ones can be very sleepy. I increase the tempo, engaging in tapping the beat on her hands and using silly action songs. The giggles and wiggles make it magical. I also use music to tell stories (my students have CVI, cortical vision impairment, so visual perception is difficult). This helps the child to engage in the story arch and adventures. Music is my conduit for reaching out and being with the students. Recently, I had the sacred journey of visiting one of my children in ICU at Sick Kids. I was invited to come to say "goodbye". A dear friend who was an ICU nurse in a different department told me (AKA, insisted) that I bring my harp with me. I wasn't sure if this would be appropriate for the family. However, with the permission of the mom, I bravely packed my harp up and took it to the Unit. It was a beautiful evening of talking with their mom and dad about how special their child was in my life. I played the kiddo's favorite songs and then ended with "The More We Get Together". The little one opened their eyes and stared at me. We hugged, and I left. They passed the next morning. I consider this time to be a sacred gift. Music Care Certification has given me the confidence and toolset to work alongside people and to journey together. It is a time a beautiful, difficult, or sacred time that I have been honoured to participate in.  Thank You
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